PRIDE Study uses smartphone apps, digital platform to build cohort for LGBTQ health research

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PRIDE Study uses smartphone apps, digital platform to build cohort for LGBTQ health research

LGBTQ research? There's an app for that

In this Fierce Healthcare article, you'll learn about:

  • The originators of the study

" The PRIDE Study launched as a digital health platform for the first large-scale, long-term national health study of people who identify as a sexual or gender minority. Researchers at Stanford and the University of California, San Francisco set out to engage and create the largest LGBTQ cohort to improve sexual and gender minority health representation in health research. "

  • The design of the study

" The pilot phase of the study that began in 2015 used an iPhone app to recruit participants. The study relaunched in 2017 on a web-based platform to reach a more diverse pool of participants.

As a result of the online-only platform and the community engagement efforts so far, the program recruited and retained 13,731 individuals from different backgrounds in two years. "

  • Ways to improve the outreach of the study

" As the PRIDE study evolves and new technologies emerge, there are multiple areas ripe for additional platform development, Lunn said, such as participant-level biospecimen collection and storage tracking and linkage to electronic health records and other data sources including direct-to-consumer genetic testing results like 23andMe.

Gamification and innovative methods to return study results to participants might help optimize study participant retention, the study said. "

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